I have Multiple Sclerosis.
No, that is not a death sentence. It is a Life Sentence of constant pain, and worse, living in a state of constant fear.
I woke up yesterday and my eyes were flickering between black and white to full color vision, and each eye was taking turns being the one that could focus. This went on for HOURS. Was this how I was going to see the world the rest of my life, never being able to see beauty ever again? It gradually subsided, Thank God, but for many it never goes away, and the same is true for some of my other painful, debilitating MS Symptoms.
Sheri has to fight with me to go to bed at night, mostly because I am not, and have never REALLY been on the same circadian rhythm as the average person. I guess a little part of it may also be a bit of fear of going to sleep, or rather, a fear of waking up!
I never know what surprise awaits me during those waking moments as I come out of deep Stage 4 REM sleep. Yesterday the MS Sight Demon was there trying to steal my vision, as if I don’t already have enough eyesight problems without his help. Most days I wake up and the MS Leg Demon is up and at it, stabbing forks into my thighs and then pulling through the flesh all the way to the tiniest little muscles in my ankles then he stabs that fork back into my thigh at the hip and RIIIIPS through my leg muscles, all the way to the bone and all the way down my leg to those tiny muscles again. And all the while, my legs are also being tried to be pulled from my body as if I were being drawn and quartered.
Yep. If I wake up and all I feel is the agony in my legs, then I Thank God for giving me a normal day instead of a day filled with new fears, new uncertainties, and new burdens to bear.
Fuck Me Man, my legs hurt like a son-of-a-bitch this morning. I have spasticity, especially in my right leg, and it is so tight, so painful that I can’t even straighten out my own leg fully! I want to scream from the pain, but it’s not a L20 yet. But I can’t keep from crying, partially from the pain, partially from the hopelessness because there is NO CURE For MS, partially because I’m all alone, partially from depression, and the rest is from fear that one day I will wake up and become one of the thousands who tell the same story. They go to bed feeling fine and they wake up paralyzed and can never walk again.
Thank You God for another Day.
Amen.
– Posted from my iPhone
Location:Isle Vista,Laguna Niguel,United States